Day 36

Stan is glad to be out of the hospital. He is still quite fatigued! Here is our schedule so you can see why it tires him out (I also have to fit showering,laundry and cleaning into each day) His Drs are still adjusting some of his meds to get the right dosage for him to get the benefits and not so many side effects.

Here is our schedule for the next week or so

-4am—take IV fluid out of refrigerator to warm to room temp

-5:30am start first IV fluid

-6:30am-glucose check (and insulin if needed)

- get breakfast ready

-7am give morning meds

-get ready to leave—put on first steroid cream

8am stop first IV meds ,flush tubing and start 2^nd IV med

8:10 put on 2^nd cream

8:20 leave for bus

9am arrive at MDAnderson

9;05 stop 2^nd IV med

9:15 go to give blood

9:30 give other meds

10am go to ATC for treatment

(treatments last 3-6 hours)

12 n test glucose-get lunch

3pm-return to apartment

3:15 start IV meds

3:20 put on steroid cream

3:50 put on 2^nd cream

4pm—give afternoon med

5pm test glucose

-make dinner

Take 2^nd IV meds out of refridge

6:45 stop IV meds

7pm give 2^nd IV meds

8-9pm give evening meds

8:30 Put on steroid cream

9pm put on 2^nd steroid cream

Take night IV meds out of fridge

11pm give night meds

And start night IV meds

1:30 am stop IV meds

4am take IV meds out of fridge

5:30 am---start all over again!

They weren't kidding when they said that Stan would need a caregiver 24/7!!!!!!